Rare Disease Day USA

Rare Disease Day®: February 29th, 2016

Rare Disease Day® takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.  Learn more about the history of Rare Disease Day.

The 2016 global theme, “Patient Voice,” recognizes the crucial role that patients play in voicing their needs and in instigating change that improves their lives and the lives of their families and carers.

The National Organization for Rare Disorders (NORD) is the official Sponsor of Rare Disease Day in the United States alongside our sister organization, EURORDIS (The European Organization for Rare Disorders), which organizes the official international campaign.  Over 80 countries participated in Rare Disease Day 2015.  To learn what’s happening around the world, visit the global Rare Disease Day website at rarediseaseday.org.

Anyone can get involved in Rare Disease Day awareness.  On this site, U.S. participants can find, suggest and get involved in events taking place across the country.  We also have suggested activities for those who are new.

Join the conversation on Facebook, Twitter and Instagram! Use the hashtag #RareDiseaseDay to help us make the day trend worldwide again this year!

Below is the official global video for Rare Disease Day 2016. We invite you to share it on social media and with your friends and family to help spread the word that February 29, 2016 is Rare Disease Day and to make the voice of rare diseases heard!

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