Patient Resources

Dermatology (includes Psoriasis and Psoriatic Arthritis)

American Academy of Dematology

https://www.aad.org/public

The American Academy of Dermatology is the largest, most influential and representative dermatology group in the United States. Their website includes not only resources about many dermatologic conditions, but news, webinars, and even learning tools for children.

National Psoriasis Foundation

https://www.psoriasis.org/

The National Psoriasis Foundation is a non-profit organization with a mission to drive efforts to cure psoriatic disease and improve the lives of those affected. Their website includes information on different types, treatments, resources for those newly diagnosed, and more.

Psoriasis Connections

https://www.psoriasisconnect.com/

On PsoriasisConnect.com, you can find information to help you learn about psoriasis, consider ways to treat psoriasis, and to discover tips for living with psoriasis.

Diabetes

American Diabetes Association

http://www.diabetes.org

The American Diabetes Association is a network of more than one million volunteers, membership of more than 500,000 people with diabetes, their families and caregivers, a professional society of nearly 14,000 health care professionals, as well as more than 800 staff members. You can find resources about living with diabetes, food and fitness, advocacy and more on their website.

Gastroenterology (includes Crohn's and Colitits)

American College of Gastroenterology

http://patients.gi.org/

The ACG provides its members with up-to-date scientific information on digestive health and the etiology, symptomatology and treatment of GI disorders.

Crohn’s & Colitis Foundation of America

http://www.crohnscolitisfoundation.org/

The Crohn’s & Colitis Foundation is a non-profit, volunteer-driven organization dedicated to finding the cures for Crohn’s Disease and ulcerative colitis, and to improving the quality of life of children and adults affected by these diseases. On their website, you can find basic information about the disease, explore current research, find support groups, and more.

Hepatitis

American Liver Foundation

http://www.liverfoundation.org/

The American Liver Foundation states that their mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease. On their website you can find educational resources, support services, information for caregivers and families, and more.

Hepatitis Central

http://www.hepatitiscentral.com/

Hepatitis Central’s web page provides information like treatment types, FAQ’s for those recently diagnosed, and a support group search.

Liver Health Connection

http://www.liverhealthconnection.org/

The mission of Liver Health Connection is to promote liver health and provide education to patients, providers, public officials and the public, and to support and advocate on behalf of those affected by liver diseases. On their website you can find educational resources about different liver diseases as well as a national helpline and how to obtain a free and confidential hepatitis C test.

Hepatitis C Association

http://www.hepcassoc.org/

The focus of the Hepatitis C Association is to educate the public, both patients and medical providers, about hepatitis C virus. Their website offers factual information through educational programs and support materials.

HIV/AIDS

AIDSinfo

https://aidsinfo.nih.gov/

AIDSinfo, a service of the U.S. Department of Health and Human Services (HHS), offers access to the latest, federally approved HIV/AIDS medical practice guidelines, HIV treatment and prevention clinical trials, and other research information for health care providers, researchers, people affected by HIV/AIDS, and the general public.

AIDS Drug Assistance Program (ADAP)

http://adap.directory/

The AIDS Drug Assistance Program is a government funded program that provides prescription drugs to low-income individuals with little to no health insurance coverage, so that they can focus on recovery instead of any financial issues related to managing their condition.  To find a Directory for ADAP programs near you, you can do so on their website.

TherapyTribe

https://support.therapytribe.com/

TherapyTribe offers their members safe, convenient, easy-to-navigate forums focused on bringing together communities of individuals suffering from various mental health illnesses, addictions and diseases. They also offer a professional therapist directory as well as self-help wellness resources.

Positive Spin

https://positivespin.hiv.gov/

Positive Spin is a digital tool that uses the power of personal stories to educate individuals about the series of steps a person with HIV takes from initial diagnosis through their successful treatment with HIV medications.

Multiple Sclerosis

Multiple Sclerosis Foundation (MSF)

https://msfocus.org/

The Multiple Sclerosis Foundation’s website is a great resource for studies and fact-based recommendations to help guide you to a healthy, happy and self-sufficient life.  You will also find MS related publications and tools to help connect you with healthcare professionals, programs and an online community.

National Multiple Sclerosis Society

http://www.nationalmssociety.org/

The National Multiple Sclerosis Society’s website contains information on MS, symptoms & diagnosis, treatment, resources, living well with MS as well as research and news.

Multiple Sclerosis Foundation of America

https://mymsaa.org/

The Multiple Sclerosis Foundation of America’s website provides online access to information, education and resources on multiple sclerosis from diagnosis & treatment to mobile apps.  They also offer a networking program for individuals and their caregivers who are interested in finding peer support and corresponding through email exchange.

Oncology

Association of Cancer Online Resources (ACOR)

http://www.acor.org/

The Association of Cancer Online Resources’ website is a unique collection of online cancer communities designed to provide accurate information in a supportive manner for patients as well as their families, friends and caregivers.  ACOR strives to help individuals with the mental transition of life with cancer.  This online community is a private, anonymous form where individuals in the same situation can exchange knowledge, hope and support.

American Cancer Society

https://www.cancer.org

The American Cancer Society’s mission is to free the world of cancer and until they do, they will be funding, conducting research, sharing expert information, supporting patients and spreading the word about prevention so all of those affected can live a longer and better life.  Their website has information on all types of cancer, their research, guides for staying healthy and treatment and support resources.

Livestrong Foundation

https://www.livestrong.org/

Livestrong Foundation provides direct services to anyone affected by cancer and connects people and communities with the services they need.  Visit their website to learn more about their cancer support and programs.

OncoLink

https://www.oncolink.org/

OncoLink is one of the largest informational website for cancer created and maintained by a group of oncology healthcare professionals.  Content is continuously updated and ranges from treatment and disease information for a newly diagnosed patient, support through the side effects of treatment and into survivorship.

Organ Transplants (Heart, Liver and Lung)

American Transplant Foundation

http://www.americantransplantfoundation.org/

The American Transplant Foundation is a national organization that strives to eliminate our country’s shortage of human transplant organs and to raise awareness about organ donation, collaborate with other organ donation groups and work towards a better public policy.  Visit their website for more information to learn about what happens during and after a transplant for recipients as well as potential donors.

American Heart Association

http://www.heart.org/HEARTORG/Conditions/CongenitalHeartDefects/CareTreatmentforCongenitalHeartDefects/Heart-Transplant_UCM_307731_Article.jsp#.WZXm3MtK3EI

The American Heart Association has a page dedicated to heart transplants to address fears and misconceptions through education.  The association’s website explains exactly what happens before, during and after a heart transplant surgery.  The page also includes helpful tips from others who have successfully recovered from heart surgery, including how to plan and prepare and how to maximize your recovery at home.

National Kidney Foundation

https://www.kidney.org/transplantation

The National Kidney Foundation has a page dedicated to specific information about kidney transplants from donation to surgery and living post-transplant.  Visit their kidney transplant page to learn about kidney disease, register to be an organ donor and connect with others in the National Kidney Foundation family.

Lung Transplant Foundation

http://lungtransplantfoundation.org/

The Lung Transplant Foundation was founded by a group of lung transplant recipients who raised funds and have been an advocate for the lunch transplant research since 2009.  Transplant recipients and their caregivers can visit their website for education and emotional support through their Mentorship program.

Rheumatology

Arthritis Foundation

http://www.arthritis.org/

The Arthritis Foundation offers links and resources not only for Rheumatology treatment resources, but for any type of arthritis from A to Z.  Their website has resources for patients of all ages and diagnoses that can help individuals maintain their independence and emotional well-being.

Rheumatoid Arthritis Support Network (RASN)

https://www.rheumatoidarthritis.org/

The Rheumatoid Arthritis Support Network website provides up to date information and resources for rheumatoid arthritis patients.  Their goal is for patients to know their options and fully understand their diagnosis and gives steps to take to improve symptoms and quality of life.

American College of Rheumatology

https://www.rheumatology.org/

The American College of Rheumatology is a worldwide professional membership organization that is committed to improving the care of patients with rheumatic disease and advancing the rheumatology subspecialty.  Patients and caregivers can visit their website for resources about the disease and conditions as well as information on treatments and access patient educational videos.

Respiratory Syncytial Virus Infection (RSV)

RSV Protection

https://www.rsvprotection.com/

RSV Protection’s website contains information about the disease and resources that can help parents tell if their child is at risk of a significant issue.  RSV affects almost all children by age two but it can lead to serious compilations and it is important to be prepared and recognize the warning signs.

Centers for Disease Control and Prevention (CDC)

https://www.cdc.gov/rsv/

The Centers for Disease Control and Prevention offers a page dedicated to RSV to educate families on this condition and provides tips for prevention and treatment.  The page also contains the latest clinical information for healthcare professionals.

Urology

Urology Care Foundation

http://www.urologyhealth.org/

The Urology Care Foundation is the official foundation of the American Urology Association and is committed to advancing urology research and education.  Their website has links to free downloads on patient educational material that contains expert information about a wide variety of issues.

Hypertension

American Society of Hypertension

https://www.ash-us.org/About-ASH.aspx

The American Society of Hypertension is the largest organization in the United States committed to preventing and treating hypertension and its consequences.

Ophthalmology

http://www.orbis.org/en – Orbis

Orbis is a nonprofit dedicated to preventing and treating blindness through education as well as supporting individuals who are visually impaired. The organization trains, researches and advocates for policies that promote awareness about eye health. Their website contains important information about eye health and opportunities for individuals to get involved in this important cause.

https://www.aao.org/eye-health – American Academy of Ophthalmology
The American Academy of Ophthalmology is a professional network for eye doctors. Their website, eyeSmart, is a helpful resource that provides expert articles about eye conditions and symptoms as well as lists of physicians in local communities.

http://www.blindness.org/ – The Foundation Fighting Blindness

The Foundation Fighting Blindness’s website contains the latest news and research on blindness, articles about preventing and treating this degenerative eye condition, and support.

http://www.glaucoma.org/  – The Glaucoma Research Foundation

The Glaucoma Research Foundation is dedicated to funding research and helping current Glaucoma patients maintain a happy, healthy life. The Foundation’s website includes facts about the disease, tips for living with Glaucoma and links to the latest research.

Fertility

http://www.reproductivefacts.org/ – The American Society for Reproductive Medicine

The American Society for Reproductive Medicine (ASRM), offers reproductive health topics, publications, educational videos as well as current news and research designed to help you understand more about your reproductive health.

https://www.womenshealth.gov/a-z-topics/infertility – The Office on Women’s Health Infertility Fact Sheet

This free infertility fact sheet helps patients become wiser health consumers, take better care of themselves and aids in the understanding and awareness of targeted health issues, such as infertility.